Section III.E.2.b.iii. State Systems Development Initiative and Other MCH
Data Capacity Efforts
The State Systems Development Initiative (SSDI) supports maternal and child health (MCH) data collection and reporting in the North Dakota Title V MCH Block Grant program by:
- Building and expanding North Dakota MCH data capacity by supporting Title V program efforts and contributing to data-driven decision making in the state’s MCH programs including assessment, planning, implementation and evaluation.
- Provides data support in conducting the Title V/MCH five-year and on-going needs assessment.
- Assists with the selection of National Performance Measures (NPMs), development of State Performance Measure’s (SPMs), State Outcome Measures (SOMs), and Evidence-Based or Informed Strategy Measures (ESMs).
- Collects and analyzes state specific data and makes available Federally Available Data (FAD) in a useable format for NPMs and associated National Outcome Measures (NOMs) for MCH program staff.
- Collects and reports SPMs and SOMs in the Electronic Handbook.
- Sets performance objectives for NPMs, NOMs, SPMs and SOMs.
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Developing and implementing a plan for overcoming barriers to data linkage across the five-year funding cycle, focusing on indicators from the Minimum/Core Datasets for Title V/MCH Block Grant programs.
- Increases linkages of MCH data sets to inform MCH program planning, evaluation and quality improvement.
- Provides direct access to datasets that inform data-driven decision making for MCH programs.
- Enhances the frequency, periodicity and timeliness of standard dataset tracking that informs MCH program planning, evaluation and improvement.
- Updates, maintain and improves the utilization of the Minimum and Core Datasets to inform data-driven decision making.
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Supporting program evaluation activities around the NPMs that contribute to building the evidence-base for the Title V/MCH Block Grant.
- Develops a plan to conduct program evaluation activities around NPMs that contribute to building the evidence-base for the Title V/MCH Block Grant.
- Initiates program evaluation activities around NPMs that contribute to building the evidence-base for the Title V/MCH Block Grant.
Annually, the SSDI Coordinator organizes and links the multiple data sources available. This access to timely and organized electronic MCH health data serves to inform and support MCH staff in program monitoring, assessment and planning.
Other MCH epidemiological and data enhancement activities that support the Title V needs assessment and performance measuring are addressed in the following table:
|
Data Project |
Description |
|
Pregnancy Risk Assessment Monitoring System (PRAMS) |
North Dakota (ND) was funded by the Centers for Disease Control and Prevention (CDC) For Component A: Core PRAMS surveillance in 2016. The 2017 ND PRAMS data was made available in June 2019 and preliminary findings were included in this application. The specific aims of this five-year project are to collect, analyze and disseminate current data on medical, social, and behavioral risk factors before, during and after pregnancy, and to foster culturally competent research practices with tribal communities throughout the state. Additional analyses were conducted to assist in making informed decisions for the 2020 MCH needs assessment. |
|
Newborn Screening NewSTEPS 360 |
Funded by the University of Colorado, Denver and the Association of Public Health Laboratories for the period of 2016-2019, the NewSTEPS 360 grant aimed at improving the quality of specimens and timeliness of ND newborn screening through surveillance, education and evaluation. Data collected from this project has been utilized in implementing educational materials and quality improvement projects around newborn screening collection practices and timeliness. Funds remaining from this project were allowed to be extended through April of 2019 to aid in continuation and completion of certain work efforts. The North Dakota Newborn Screening and Long-term Follow-up Program was funded by the Association of Public Health Laboratories for an 18-month continuous quality improvement (CQI) project through August 2021 to assist in building a case management system for long-term follow-up, while reducing lost to follow-up for patients who have a positive newborn screening. Necessary revisions to education materials including long-term follow-up will also be completed and distributed to partners statewide. |
|
Maternal Mortality Surveillance |
An informal maternal mortality review panel exists in ND under the leadership of the University of North Dakota’s Department of Obstetrics and Gynecology. As of 2018, the North Dakota Department of Health’s Division of Vital Records is able to maintain case reports and predisposing factors leading to maternal deaths. In the upcoming year, the MCH leadership team will formalize this process and incorporate additional data sources. |
|
National Violent Death Reporting System (NVDRS) |
ND was funded by the CDC for the NDVRS in 2018. NDVRS is a state-based surveillance (reporting) system that links data on violent deaths from multiple sources into a useable, anonymous database. These sources include state and local medical examiners, coroners, law enforcement, toxicologists, and vital statistic records. NVDRS collects information from violent deaths, including homicides, suicides, deaths of undetermined intent, unintentional firearm deaths, legal intervention and terrorism. NDVRS provides detailed information on circumstances precipitating violent deaths, combines information across multiple data sources, comprehensively describe violent deaths, and links multiple deaths to one another. The purpose of NDVRS is to create and implement a plan to collect and disseminate accurate, timely, and comprehensive surveillance data on all violent deaths in ND to increase violence prevention efforts and reduce morbidity and mortality related to violence. |
|
Dental Workforce Perspective on Opioid Prescription Practices |
The Oral Health Program (OHP) developed a survey in partnership with the North Dakota Dental Association (NDDA) and North Dakota Department of Human Services (NDDHS), Behavioral Health Division, to gain a better understanding of current prescribing practices and procedures of the dental professionals in ND. The survey focused on opioid prescription patient screening registration status of dental professionals with the Prescription Drug Monitoring Program (PDMP), and continuing education related to opioids and pain management. Data collection and entry of the survey, which was administered by the North Dakota State University Center for Social Science Research, was completed in May 2019 with over 50% of the dentist in ND responding. Findings from the analyses was shared with key stakeholders, including NDDA, North Dakota Board of Pharmacy, the North Dakota Board of Dental Examiners and the NDDHS Behavioral Health Division. The findings were utilized to develop a task force addressing the specific opioid education and training needs of dental professionals. The MCH epidemiologist also serves as OHP epidemiologist and has been leading these efforts. |
|
North Dakota Prescription Drug Monitoring Program (PDMP) |
The ND Prescription Drug Monitoring Program is a robust data collection and management resource utilized by prescribing providers in ND to monitor prescription histories of patients for controlled substances in ND. Through an agreement between North Dakota Department of Health and the North Dakota Board of Pharmacy, these data are routinely made available to the State Epidemiologists, which also houses the MCH epidemiologist. These are used to monitor prescription practices and trends by providers as they relate to the MCH population. |
|
ND Study of Associated Risks of Stillbirth |
In 2018, the number of cases of stillbirth (60) in North Dakota surpassed the number of infant mortality cases (54) in the state. In the efforts to understand the maternal health issues around stillbirth, the ND MCH Program partnered with North Dakota State University and the CDC to expand the PRAMS program and survey women who have lost a child to stillbirth through the Study of Associated Risks of Stillbirth (SOARS) study. Launching in August 2020, SOARS, under the leadership of the MCH epidemiologist will provide critical information on maternal health, risks associated with stillbirth, and potential areas of intervention to prevent this adverse outcome. |
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