Children and Youth with Special Health Care Needs Plan

CYSHCN Program staff integrated with Title V MCH Programs serving infants, children, and adolescents through projects funded to increase developmental screening, access to care and the medical home, insurance assistance, health care transition, family support and wraparound services, adaptive and inclusive physical activity, sexual assault prevention for young adults with developmental disabilities, and CCHD. The CYSHCN Program also collaborated with partners to support projects focused on genetic counseling and screening and child mental health.

Future endeavors include collaboration with other MCAH Programs, including PRAMS to reach families and pregnant people, TPP to further sexual assault prevention and sexual health efforts, and MIECHV to reach families and women of childbearing age. The CYSHCN Program will also continue to build or sustain relationships with state agencies DHCFP (Medicaid, EPSDT, and Katie Beckett Programs); NEIS and the IDEA Part C Office; Department of Education (DOE; Office of Inclusive Education and Child Find Department); DCFS (Children’s Mental Health and Independent Living Programs); Department of Employment, Training, and Rehabilitation (DETR; Bureau of Vocational Rehabilitation); and the Nevada Chapter of American Academy of Pediatrics (AAP). With this expansion in connectedness, the CYSHCN Program will further improve services, referrals, and specialized resources for CYSHCN and their families in Nevada. The CYSHCN Program will continue to share COVID-19 resources with community members and families, emphasizing resources related to CYSHCN and to ensure MHP resources are up to date. Specific needs of high priority CYSHCN will be shared with NSIP; for example, conversations related to sickle cell anemia and hemoglobinopathies are ongoing in preparation and planning efforts.

Medical Home Portal

To increase awareness of the MHP, each Title V MCH funded partner will continue to promote the MHP as part of their scope of work. The MHP will continue to be promoted to medical providers in Nevada to increase referrals to needed resources and to families to provide easy access to local or statewide resources for a variety of health-related and social services. With prior promotional success utilizing social media, more campaigns will be launched in FFY 2020. The MHP increases knowledge of the Medical Home Model and CYSHCN-specific content, is available in multiple languages, and is an easy-to-use conduit to connect CYSHCN, their families, and providers to resources for needed services state and nationwide.  The CYSHCN Program Coordinator provided COVID-19 resources to the MHP which are now available and changes in search terms queried by end users will be monitored for feedback on CYSHCN areas of need.

Nevada Center for Excellence in Disabilities

NCED will continue to develop a program with Title V MCH funding designed to help children and youth with and without special health care needs transition from pediatric to the adult health care system without loss of medical coverage, as well as increased referrals to and promotion of the MHP. The program will continue to offer online trainings using the Got Transition six core elements, related resources, and case-based discussion. Online courses allow easy access to providers in the rural and frontier communities and Nevada’s larger counties.

Social Media Promoting Access to Care

Title V MCH will continue to fund social media efforts to promote the MHP and health care transition. Messages and videos will target providers, parents, and caregivers of children and youth with and without special health care needs. Social media exposure allows information to be available through individuals' personal Facebook, Instagram, and Twitter accounts with opportunities to reach those not actively seeking services.

Family TIES of Nevada (FTON)

The board of directors for Family TIES of Northern Nevada decided to disband the organization effective June 30, 2021.  The activities, goals and objectives will be administered by another agency.  Title V MCH staff is drafting a subaward with UNR through the NCED.

Emergency Preparedness and Response Action Learning Collaborative

MCAH staff will continue to participate in EPR-ALC collaborative efforts to enhance the integration of MCH populations in EPR plans.  The PHEP Program and MCAH will continue to collaborate to meet ALC action items.

Northern Nevada Cleft Palate Clinic

COVID-19 affected the NNCPC, and they were unable to perform normal operations from March through September 2020.  In cooperation with NNCPC, Title V MCH decided to redirect the funding to the NCED to enhance transition to adult healthcare efforts for children with and without special health care needs.

University Center for Autism and Neurodevelopment

Title V MCH funded UCAN to purchase and disseminate Milestone Moments booklets.  However, Title V funding will not be used for UCAN to attend trainings for professionals and parents related to neurodevelopmental disorders.

Nevada Critical Congenital Heart Disease Registry

The Nevada CCHD Registry’s goal is to increase survival of newborns with CHD and to reduce loss to follow-up. The Registry will continue to ensure Nevada-born infants are screened for CCHD and those diagnosed with CCHD receive timely and appropriate medical care. The Title V MCH Program will continue to collect and report data annually. The Title V MCH Program, in conjunction with NHA and AHA, will continue to provide technical assistance to ensure Nevada birthing hospitals report CCHD screenings. Emerging CCHD data will be explored.

Developmental Screening

The Children’s Cabinet will be awarded Title V MCH funds for developmental screenings using the Pyramid Model framework. The ASQ-SE2 and ASQ-3 developmental screenings will continue statewide, focusing on Nevada’s frontier and rural areas. Online implementation of ASQ-SE2 and ASQ-3 screenings will be available, along with promoting the Learn the Signs. Act Early campaign. Nevada WIC staff will provide resources to refer a child when indicated. Families will be provided with Milestone Moment booklets in English and Spanish or given information on accessing the CDC mobile app tracker to monitor their child’s development. MCH will participate in a statewide co-funded effort led by UNR related to printing and distributing Nevada-customized CDC Milestone Moments booklets.

The Children’s Cabinet and Nevada Technical Assistance Center on Social Emotional Interventions

The Nevada Technical Assistance Center on Social Emotional Interventions (TACSEI) will continue to focus on frontier and rural areas of the state. TACSEI will meet with staff at private, religious, charter, public, preschools, and daycares to implement screenings and programs. The Family Engagement Coordinator (FEC) will continue to conduct technical assistance (TA) and training based on the Pyramid Model to personnel within organizations serving CYSHCN 0-5 years of age. The FEC will also continue to facilitate parent involvement in TA development, implementation, and evaluation to support family engagement in early care and education settings. The Regional Coordinator (RC) and fellow TACSEI staff will attend summit and leadership meetings to increase program reach. Online implementation of the ASQ-SE2 screenings and data collection will continue, along with the distribution of Milestone Moment booklets in English and Spanish. Through CCDF funding, The Children’s Cabinet contributed $5,000 towards the reprinting of these booklets and our Reno, Elko and Las Vegas offices all serve as statewide distribution locations for these booklets.