Sooner SUCCESS will compile a list of family physicians, internists, and specialty physicians willing to serve children transitioning into adult health care. These identified physicians, along with critical protocols and practices, will be made available in the toolkit as well as on the Sooner SUCCESS website and the Oklahoma Physicians Resource/Research Network (OKPRN) website. As the resources in the toolkit will be accessible to all practitioners, the Sooner SUCCESS toolkit will also be valuable to youth without special health care needs. This toolkit will be continuously improved as additional information is acquired and new resources are identified.
Sooner SUCCESS will continue to talk to families with children 12 years and older about health care transition and provide valuable information about the process. They will additionally continue to distribute, collect, and analyze surveys in an effort to continuously monitor changes in the percentage of families with transition plans.
Sooner SUCCESS will conduct a pilot study with interested clinics at the University of Oklahoma Health Sciences Center (OUHSC) to increase the number of families with children with special health care needs who report receiving transition services while transitioning from pediatrics to adolescent health care settings.
Oklahoma Family Network (OFN) will continue partnering with Sooner SUCCESS and other agencies and organizations to improve the health care transition process. OFN will also continue to develop relationships with primary care providers as well as other providers. OFN plans to continue hosting the Baylor Healthcare Transition Conference and encouraging providers and families to participate.
OFN staff will continue to partner with others promoting the importance of transition planning. This partner will also continue facilitating LifeCourse Tools and Transition Care Notebook Training.
Family Support 360° will likewise continue to be part of the health care transition subcommittee, representing the Hispanic/Latino community. They will direct families to the Sooner SUCCESS toolkit in order to assist with transition planning. In addition, Family Support 360° will continue conversations with pediatric residents during their practicum rotation in regards to the transition from pediatric to adult health care.
Family Support 360° will continue to develop a bilingual (Spanish and English) document on health care transition for families and youth. The one-page document will have a number of “quick facts.” Family Support 360° will continue to talk with support groups about health care transition and services available to families, including those in the Hispanic community.
The Sickle Cell Clinic plans to partner with Sooner SUCCESS for the Health Care Transition Pilot Study which will involve using iPads to assist with providing education on health care transition.
OITP will continue to identify resources for the adolescent population that will be accessible in an electronic format; although some resources are compatible with electronic platforms, many remain in only a printed format.
OFN will continue to assist with the Oklahoma Works for ALL pilot by providing Life Course Training to families and helping students and school personnel in pilot sites with creating a vision for transition as well as IEPs.
OFN and multiple family organizations will host a Parent Conference as an opportunity for additional networking, learning, and collaborating after the 12th Annual Joining Forces Conference. The Parent Conference will provide multiple sessions, including a track focused on transition. Topics include, “What you need to know about SSI, Guardianship, and Power of Attorney,” “Best Kept Secret - DRS Transition Services,” and “Graduating from Pediatric Care and Post-Secondary Programs for Students with Intellectual or Developmental Disabilities.”
OITP will expand their patient base to include infants with children who have been on extracorporeal membrane oxygenation (ECMO), children with hydrocephalus, and infants with complex cardiac disease.
OITP plans on including fathers in support groups and will form an alliance with the Oklahoma State Department of Health to determine additional needs and resources for NICU families regarding behavioral and mental health.
In addition, OITP plans to increase parent activities during the holiday season when emotional stress is at a peak. OITP will participate in community groups to compile resources for parents in rural Oklahoma. Staff will host live webcasts on the OITP Facebook page that will give parents valuable information about transitioning home and wisely using resources. OITP will also be supporting the Cribs for Kids initiative.
OITP will enhance their website to ensure as many resources as possible can be accessed electronically. A toolkit will be developed for parents, as they discharge from the NICU, which can be used to access critical information on the website and Facebook page. Families will meet with OITP on a one-on-one basis to ensure that they receive available resources or information.
OFN will continue to work with multiple agencies and organizations to provide book parties for families who have CSHCN to promote mental health awareness and resources. OFN will also continue to collaborate with the Children’s Behavioral Health Network by providing supports and resources for families who have children with mental health concerns. Leadership stipends and learning opportunities will be provided for families to attend events such as the Annual Joining Forces Conference and Children’s Behavioral Health Conference. This will help families to increase their knowledge, involvement, partnerships, and connections with the goal of improving access to behavioral and mental health services. OFN will also continue working with state agencies through the START (Systemic, Therapeutic, Assessment, Resources, and Treatment) Project and other opportunties to address the needs and services for families.
The J.D. McCarty Center plans to continue providing respite care services and free therapeutic services screenings focused on children with intellectual or developmental disabilities.
Family Partners will continue active involvement in evaluation/feedback sessions. The Family Partner position will go from being part-time to full-time. The incumbent will work with both Family Partners and Sooner SUCCESS. The plan is for the Family Partner to utilize a simplified questionnaire to obtain feedback by phone from families approximately 4-6 weeks after an appointment to obtain family input about their evaluation and feedback session. The goal is for the Family Partner to regularly follow-up with families after their visit to assist with identifying recommended resources and services. The incumbent will be bilingual in Spanish and English.
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