Children and Youth with Special Health Care Needs Plan for The Application Year

The Title V MCH Program serves infants, children, and adolescents through projects funded to increase developmental screening, access to care and the medical home, insurance assistance, health care transition, family support and wraparound services, adaptive and inclusive physical activity, sexual assault prevention for young adults with developmental disabilities, and CCHD. The Title V MCH Program also collaborates with partners to support projects focused on genetic counseling and screening and child mental health.

Future endeavors include collaboration with other MCAH Programs, including PRAMS to reach families and pregnant people, TPP to further sexual assault prevention and sexual health efforts, and MIECHV to reach families and women of childbearing age. The Title V MCH Program will also continue to build or sustain relationships with state agencies DHCFP (Medicaid, EPSDT, and Katie Beckett Programs); NEIS and the IDEA Part C Office; Department of Education (DOE; Office of Inclusive Education and Child Find Department); DCFS (Children’s Mental Health and Independent Living Programs); Department of Employment, Training, and Rehabilitation (DETR; Bureau of Vocational Rehabilitation); and the Nevada Chapter of American Academy of Pediatrics (AAP). With this expansion in connectedness, the Title V MCH Program will further improve services, referrals, and specialized resources for CYSHCN and their families in Nevada. The Title V MCH Program will continue to share COVID-19 resources with community members and families, emphasizing resources related to CYSHCN and to ensure MHP resources are up to date. Specific needs of high priority CYSHCN will be shared with NSIP; for example, conversations related to sickle cell anemia and hemoglobinopathies are ongoing in preparation and planning efforts.

Medical Home Portal

To increase awareness of the MHP, each Title V MCH funded partner will continue to promote the MHP as part of their scope of work. The MHP will be promoted to medical providers in Nevada to increase referrals to resources and to families to provide easy access to local or statewide resources for health-related and social services. With prior promotional success utilizing social media, more campaigns will be launched. The MHP increases knowledge of the Medical Home Model and CYSHCN-specific content, is available in multiple languages, and is an easy-to-use conduit to connect CYSHCN, their families, and providers to resources for needed services state and nationwide. The Title V MCH Program provided COVID-19 resources to the MHP which are now available and changes in search terms queried by end users will be monitored for feedback on CYSHCN areas of need.

Nevada Center for Excellence in Disabilities (NCED)

Title V MCH funding will continue health transition efforts with NCED in the College of Education at UNR. NCED will host a Project ECHO series for medical providers using Got Transition’s evidence-driven strategies. The six-core elements will improve provider access to information on transitioning from pediatric into the adult health care system.

Needs Assessment

Title V MCH Program staff are working with NCED to conduct a Needs Assessment to inform priorities, facilitators, and barriers to youth engagement. Focus groups will include youth ages 13-18, with one focus group comprised of youth with special health care needs. Parents of youth will also be surveyed to understand family priorities. Results will be compiled in a final report which will include an action plan and road map to increase engagement with Title V MCH efforts.

Family Navigation Network (FNN)

FNN will continue to build upon the community engagement and partnerships made during their first year as a subawardee to increase the percent of CYSHCN with a medical home in Nevada. FNN anticipates serving more families as their statewide presence increases, and staff will continue to facilitate caregiver connection with Medicaid services by receiving Katie Beckett training. FNN will also continue to support the Title V Family Representative.

Social Media Promoting Access to Care

The Title V MCH Program will continue to fund social media efforts to promote the MHP and health care transition. Messages and videos will target providers, parents, and caregivers of children and youth with and without special health care needs. Social media exposure allows information to be available through individuals' personal Facebook, Instagram, and Twitter accounts with opportunities to reach those not actively seeking services.

Emergency Preparedness and Response

MCAH staff will continue to participate in collaborative efforts to enhance the integration of MCH populations in EPR plans. The PHEP Program and MCAH will continue to collaborate and share information.

University Center for Autism and Neurodevelopment

Title V MCH funded UCAN to purchase and disseminate Milestone Moments booklets. However, Title V funding will not be used for UCAN to attend trainings for professionals and parents related to neurodevelopmental disorders.

Nevada Critical Congenital Heart Disease Registry

The Nevada CCHD Registry’s goal is to increase survival of newborns with CHD and to reduce loss to follow-up. The Registry will continue documenting screening of Nevada-born infants for CCHD and that those diagnosed with CCHD receive timely and appropriate medical care. The Title V MCH Program will continue to collect and report data annually. The Title V MCH Program, in conjunction with NHA and AHA, will continue to provide technical assistance to ensure Nevada birthing hospitals report CCHD screenings. Emerging CCHD data will be explored. Furthermore, a Request for Proposal is in development with the Early Hearing Detection Intervention (EHDI) Program to obtain a data management software to support enhanced data collection efforts.

Developmental Screening

The Children’s Cabinet will be awarded Title V MCH funds for developmental screenings using the Pyramid Model framework. The ASQ-SE2 and ASQ 3rd Edition (ASQ-3) developmental screenings will continue statewide, focusing on Nevada’s frontier and rural areas. Online implementation of ASQ-SE2 and ASQ-3 screenings will be available, along with promoting the Learn the Signs. Act Early campaign. Nevada WIC staff will provide resources to refer a child when indicated. Families will be provided with Milestone Moment booklets in English and Spanish or given information on accessing the CDC mobile app tracker to monitor their child’s development.

The Children’s Cabinet and Nevada Pyramid Model Partnerships

The Nevada Pyramid Model Partnership will continue to focus on frontier and rural areas of the state. Nevada Pyramid Model will meet with staff at private, religious, charter, public, preschools, and daycares to implement screenings and programs. Southern Nevada partnership will continue with Acelero Head Start program to identify future participating implementation sites, with the potential to expand to all 15 sites. The Family Engagement Coordinator (FEC) will continue to conduct technical assistance (TA) and training based on the Pyramid Model to personnel within organizations serving CYSHCN 0-5 years of age. The FEC will also continue to facilitate parent involvement in TA development, implementation, and evaluation to support family engagement in early care and education settings. The Regional Coordinator (RC) and fellow Nevada Pyramid Model Partnership staff will attend leadership meetings to increase program reach. Online implementation of the Ages and Stages Questionnaire: Social Emotional 2nd Edition (ASQ-SE2) screenings and data collection will continue, along with the distribution of Milestone Moment booklets in English and Spanish.