(Appendix H of the MCH Block Grant - Application/Annual Report Guidance, Appendix of Supporting Documents)

A comprehensive glossary of terms relevant to maternal and child health (MCH) practice, including services for children with special health care needs (CSHCN), is available on the MCH Navigator site.  To access the Glossary, click on:  This project is administered by Georgetown University through funding provided by the Health Resources and Services Administration’s (HRSA) Maternal and Child Health Bureau (MCHB.)  The MCH Navigator is a learning portal for MCH professionals, students, and others working to improve the health and well-being of women, children, adolescents, and families.       


Definitions included in this Glossary are intended to supplement the broader set of terms that are included in the MCH Navigator Glossary.  The following list of terms and their definitions have specific relevance to the State Title V MCH Block Grant programs.

MCH Working Framework:  MCH Pyramid of Services

Public Health Services for MCH Populations

As depicted on the Revised MCH Pyramid, the working framework for the Title V MCH Block Grant to States Program aligns with the 10 MCH Essential Services and consists of three levels.  Definitions are provided on the next page for each level of service.

In developing systems of care, States should assure that they are family centered, community based and culturally competent.

Direct Services Direct services are preventive, primary, or specialty clinical services to pregnant women and children, including children with special health care needs, where MCH Services Block Grant funds are used to reimburse or fund providers for these services through a formal process similar to paying a medical billing claim or managed care contracts.  State reporting on direct services should not include the costs of clinical services which are delivered with Title V dollars but reimbursed by Medicaid, CHIP or other public or private payers.  Examples include, but are not limited to, preventive, primary or specialty care visits, emergency department visits, inpatient services, outpatient and inpatient mental and behavioral health services, prescription drugs, occupational and physical therapy, speech therapy, durable medical equipment and medical supplies, medical foods, dental care, and vision care.

Enabling Services Enabling services are non-clinical services (i.e., not included as direct or public health services) that enable individuals to access health care and improve health outcomes where MCH Services Block Grant funds are used to finance these services.  Enabling services include, but are not limited to: case management, care coordination, referrals, translation/interpretation, transportation, eligibility assistance, health education for individuals or families, environmental health risk reduction, health literacy, and outreach.   State reporting on enabling services should not include the costs for enabling services that are reimbursed by Medicaid, CHIP, or other public and private payers.  This category may include salary and operational support to a clinic or program that enable individuals to access health care or improve health outcomes.  Examples include the salary of a public health nurse who provides prenatal care in a local clinic or compensation provided to a specialist pediatrician who provides services for children with special health care needs.

Public Health Services and Systems– Public health services and systems are activities and infrastructure to carry out the core public health functions of assessment, assurance, and policy development, and the 10 essential public health services. Examples include the development of standards and guidelines, needs assessment, program planning, implementation, and evaluation, policy development, quality assurance and improvement, workforce development, and population-based disease prevention and health promotion campaigns for services such as newborn screening, immunization, injury prevention, safe-sleep education and anti-smoking.  State reporting on public health services and systems should not include costs for direct clinical preventive services, such as immunization, newborn screening tests, or smoking cessation.

Title V Program Administration 

Administrative Title V Funds - The amount of funds the State uses for the management of the Title V allocation.  This amount is limited by statute to 10 percent of the Federal Title V allotment.

Capacity – Program capacity includes delivery systems, workforce, policies, and support systems (e.g., training, research, technical assistance, and information systems) and other infrastructure needed to maintain service delivery and policy making activities.  Program capacity results measure the strength of the human and material resources necessary to meet public health obligations.  As program capacity sets the stage for other activities, program capacity results are closely related to the results for process, health outcome, and risk factors.  Program capacity results should answer the question, “What does the State need to achieve the results we want?”

Children – A child from his/her first birthday through the 21st year, who is not otherwise included in any other class of individuals (e.g., counted as a pregnant woman.)

Data Systems Development – Development of data management systems (electronic or other) or linking of existing databases to support States’ ability to collect, tabulate, analyze, and report data accurately. (See Systems Development.)

Early Neonatal Period – The early neonatal period begins at birth and lasts through the 6th day of life.

Federal Allocation – The funding provided to the States under the Federal Title V Block Grant in any given fiscal year; applies specifically to the Application Face Sheet

(SF-424) and Form 2. 

Government Performance and Results Act (GPRA) – Federal legislation enacted in 1993 that requires Federal agencies to develop strategic plans, prepare annual plans setting performance goals, and report annually on actual performance.

Infants – Children less than one year of age that are not included in any other class of individuals.

Jurisdictions – The following jurisdictions receive Title V Maternal and Child Health Block Grant Program funding:  the District of Columbia, the Republic of the Marshall Islands, the Federated States of Micronesia, the Republic of Palau and the U.S. territories of the Commonwealth of Puerto Rico, the Virgin Islands, Guam, American Samoa, and the Commonwealth of the Northern Mariana Islands.

Life Course Theory (LCT) – A conceptual framework that helps explain health and disease patterns – particularly health disparities – across populations and over time.  Instead of focusing on differences in health patterns based on one disease or condition at a time, LCT points to broad social, economic and environmental factors as underlying causes of persistent inequalities in health for a wide range of diseases and conditions across population groups.   LCT is population focused, and firmly rooted in social determinants and social equity models.  Though not often explicitly state, LCT is also community (or “place”) focused, since social, economic and environmental patterns are closely linked to community and neighborhood settings. [1]     

Local – Funds derived from local jurisdictions within the State, which are used for MCH program activities and reported on the Application Face Sheet (SF 424) and Form 2.

Low Income – An individual or family with an income that is determined to be below the income official federal poverty line, as defined by the Office of Management and Budget and revised annually in accordance with section 673(2) of the Omnibus Budget Reconciliation Act of 1981.  [Title V, Sec. 501 (b)(2)]

Needs Assessment – A process to understand the strengths and needs of the health service system within a community or population.  For maternal and child health purposes, needs assessment efforts consider the following components: 1) health status, 2) health service utilization, 3) health systems capacity, and 4) population/ community characteristics and contextual characteristics.

Neonatal Period – The neonatal period begins at birth and lasts through the 28th day following birth.

Newborn – A human infant from the time of birth through the 28th day of life.

Other Federal Funds – Federal funds other than the Title V Block Grant that are under the control of the person responsible for administration of the Title V program and reported on the Application Face Sheet (SF 424) and Form 2.  These funds may include, but are not limited to: WIC, EMSC, Healthy Start, SPRANS, HIV/AIDs monies, CISS funds, MCH targeted funds from CDC, MCH Education funds and Medicaid Federal Medical Assistance Percentage (FMAP). 

Others (Class of Individuals) – Women of childbearing age, over age 21, and any others defined by the State who are not otherwise included in any of the other listed classes of individuals.  (Form 3a and Form 5a)

Perinatal – The period of gestation between 28 weeks or more to 7 days or less after birth.

Post-neonatal Period – The period between the end of the first month to a year after birth. 

Pregnant Woman – A female from the time that she conceives to 60 days after birth, delivery, or expulsion of fetus.

Prenatal – Occurring or existing before birth, referring to both the care of the woman during pregnancy and the growth and development of the fetus.

Program Income – Funds collected by State MCH agencies from sources generated by the State’s MCH program to include insurance payments, Medicaid reimbursements , HMO payments, etc., as reported on the Application Face Sheet [SF 424] and Form 2.

State – Terminology used in this Guidance to reference the 50 States and the nine jurisdictions.  (See also “Jurisdictions”)

State Funds – The State’s required matching funds (including overmatch) in any given year, as reported on the Application Face Sheet [SF 424] and Form 2.

Technical Assistance (TA) – The process of providing advice, assistance, and training by an expert with specific technical/content knowledge to address an identified need.  Technical Assistance relationships are program-focused, and may use an interactive, on-site/hands-on approach as well as telephone or email assistance.  Technical Assistance delivery is short in duration, customized to meet the needs of the client, and offers prescriptive solutions to a specific issue. [Concordia University,]

Title V of the Social Security Act – The authorizing legislation for the Maternal and Child Health Services Block Grant to States Program.

Title V Reporting Form 6, Deliveries to Pregnant Women – Unduplicated number of deliveries to pregnant women who were provided prenatal, delivery, or post-partum services through the Title V program during the reporting period.

Title V Reporting Form 6, Infants Served by Title V – The unduplicated count of infants provided a direct service by the State’s Title V program during the reporting period.

Title XIX of the Social Security Act – The authorizing legislation for the Medicaid program.

Title XIX Reporting on Form 6, Pregnant Women Eligible for Title XIX – The number of pregnant women who delivered during the reporting period and were eligible for the State’s Title XIX (Medicaid) program.

Title XIX Reporting on Form 6, Infants Eligible for Title XIX – The number of infants eligible for the State’s Title XIX (Medicaid) program.

Title XXI – Children’s Health Insurance Program (CHIP) financed via the Centers for Medicare and Medicaid Services (CMS).  The purpose of this title is to provide funds to States to enable them to initiate and expand the provision of child health assistance to uninsured, low-income children in an effective and efficient manner that is coordinated with other sources of health benefits coverage for children.

(Sec. 2101. [42 U.S.C. 1397aa])

Total MCH Funding – All of the MCH funds administered by a State MCH program.  Included in this sum total are:  1) the Federal Title V Block grant allocation; 2) the Applicant’s funds, which consists of the unobligated balance from the previous year’s MCH Block Grant allocation, the State’s total matching funds for the Title V allocation (match and overmatch); 3) the Local funds, which are the total amount of MCH dedicated funds from local government within the State); 4) Other Federal funds (monies other than the Title V Block Grant that are under the control of the person responsible for administration of the Title V program), and 5) Program Income (funds  collected by State MCH agencies from insurance payments, Medicaid, HMO’s, private grants , etc.)

Unobligated Balance – The amount of unexpended funds from the previous year’s    Title V MCH Block Grant, as reported as Applicant funds on the Application Face Sheet [SF 424] and as Unobligated Balance on Form 2.

Performance Measurement

Objectives – The yardsticks by which an agency can measure its efforts to accomplish a goal.  (See also Performance Objectives)

Outcome Measure – The ultimate focus and desired result of any set of public health program activities and interventions is an improved health and well-being outcome.  Health and well-being outcomes are usually longer term and tied to the ultimate program goal. Morbidity and mortality statistics are indicators of achievement of health outcomes.    Other outcomes reflect commonly accepted indicators of a highly functioning system of care for children with special health care needs and their families, positive outcomes, outcomes which are legislatively mandated or are a legislative focus, outcomes where the prevalence is increasing, and developmental outcomes where a fully functioning data system does not exist.

Performance Indicator – The statistical or quantitative value that expresses the result of a performance objective.

Performance Measure – A narrative statement that describes a specific maternal and child health need or requirement that, when successfully addressed, will lead to or will assist in leading to a specific health outcome within a community or jurisdiction and generally within a specified time frame.  (Example: “The rate of women in [State] who receive early prenatal care in 20__.”  This performance measure will assist in leading to [the health outcome measure of] reducing the rate of infant mortality in the State).

Performance Measurement – The collection of data on, recording of, or tabulation of results or achievements, usually for comparison to a benchmark.

Performance Objectives – A statement of intention with which actual achievement and results can be measured and compared.  Performance objective statements clearly describe what is to be achieved, when it is to be achieved, the extent of the achievement, and the target populations.

Evidence-based or –Informed Strategy Measure (ESM) –Developed by the State, ESMs would assess the impact of State Title V strategies and activities contained in the State Action Plan.  It is envisioned that the development of the ESMs will be guided through an examination of the evidenced-based or evidence-informed practices on what strategies and activities are both practical and measurable.  The main criteria for the ESM would be that the activities had to be measurable, and there had to be evidence that the activity was related to the performance measure chosen.      

Evidence-based or –Informed Strategy Measure (ESM) Objectives – The objectives for activities and interventions that drive the achievement of higher-level objectives by the State Title V program.

Risk Factors – Public health activities and programs that focus on reduction of scientifically established direct causes of, and contributors to, morbidity and mortality (i.e., risk factors) are essential steps toward achieving desired health outcomes.  Changes in behavior or physiological conditions are the indicators of achievement of risk factor results.  Results focused on risk factors tend to be intermediate term.  Risk factor results should answer the question, “Why should the State address this risk factor (i.e., what health outcome will this result support)?”

Risk Factor Objectives – Objectives that describe an improvement in risk factors (usually behavioral or physiological) that are associated with morbidity and mortality.

Targets – An aspired outcome that is explicitly stated , e.g. achieve 90% of timeliness of reporting, 100% completeness of reporting, etc.  In this Guidance , “Targets” is often used interchangeably with “Objectives.”

Collaborative Learning, Innovation and Quality Improvement

Aim Statement – A written measureable description of desired outcomes used in a quality improvement initiative.  A strong AIM statement outlines what is to be accomplished, quantifies the changes that are to be achieved and sets a date by which the goals will be reached. 

Blueprint for Change – A tool to help define action steps for a team’s strategic priorities.

CoIIN versus COIN – The Collaborative Improvement and Innovation Network (CoIIN) initiative extends the Collaboration Innovation Network (COIN) model to include the concept of improvement in recognition of the need to strengthen existing investments in maternal and infant health as well as to develop innovative, new approaches.

Collaborative Innovation Network (COIN) – A cyberteam of self-motivated people with a collective vision, enabled by the Web to collaborate in achieving a common goal by sharing ideas, information and work. [2]

Collaborative Learning – Projects using this model enable learners of different abilities and interests to work jointly in small groups to complete a project or solve a problem.

Collective Impact – A concept that provides a framework for bringing diverse people and organizations together in a structured way to achieve social change.[3]

Driver Diagram – A logic chart that organizes the different aspects of an improvement project so key interventions and relationships between these interventions may be clearly understood by all involved.

Infant Mortality CoIIN Framework – A framework that presents a theory of the relationships between (1) key domains of influence (e.g., engaged leadership or innovation), (2) the periods of engagement, and (3) the strategies priorities that will be employed to reduce infant mortality rates in the U.S. 

Learning Collaborative – A group of individuals or organizations that come together for a defined period of time to work together to improve process relevant to a specific topic.  Members of a learning collaborative generally agree upon a shared set of data to measure and meet regularly to learn from each other and project experts.

Learning Sessions – Members of learning collaboratives generally agree to a regular schedule of multi-day meetings throughout the collaborative.  These meetings may be in person or virtual.  The learning sessions allow Collaborative faculty and partners to share latest research or important information on the topic of the collaborative, and they allow participants to share their work and to learn from each other. 

Perinatal Periods of Risk (PPOR) – Both a community approach and an analytic framework for investigating and addressing high infant mortality rates in urban settings.  The overall intent of the PPOR approach is to develop a simple method that can be used by communities to mobilize and prioritize prevention efforts.  PPOR brings community stakeholders together to build consensus, support and partnership around infant mortality rates. [4]  

Primary Drivers – Found in the CoIIN framework and driver diagrams, drivers are system components, factors or broad improvement areas that contribute directly to achieving the stated outcome.  For example, if the outcome is reducing infant mortality, a strategic priority/primary driver might be to improve access to and quality of prenatal care for women.  (See Strategic Priorities) 

Potential Action/Change Concept – Actionable steps for change targeted at improving specific processes, often originating from brainstorming sessions with the team and evidence-based best practices. 

Quality Improvement in Public Health – The use of a deliberate and defined improvement process, which is focused on activities that are responsive to community needs and improving population health.  This effort is continuous and ongoing to achieve measureable improvements in the efficiency, effectiveness, performance, accountability, outcomes and other indicators of quality in services or processes, which achieve equity and improve the health of the community. [5] 

Strategic Priorities – Found in the CoIIN framework and driver diagrams, these priorities are system components, factors or broad improvement areas that contribute directly to achieving the stated outcome.  For example, if the outcome is reducing infant mortality, a strategic priority/primary driver might be to improve access to and quality of prenatal care for women. 

Family/Consumer Engagement

Cultural Competence – A set of values, behaviors, attitudes, and practices within a system, organization, program or among individuals and which enables them to work effectively cross culturally.  Further, cultural competence refers to the ability to honor and respect the beliefs, language, inter-personal styles and behaviors of individuals and families receiving services, as well as staff who are providing such services.  At a systems, organizational, or program level, cultural competence requires a comprehensive and coordinated plan that includes interventions at all the levels from policy-making to the individual, and is a dynamic, ongoing, process that requires a long-term commitment.  A component of cultural competence is linguistic competence, the capacity of an organization and its personnel to communicate effectively, and convey information in a manner that is easily understood by diverse audiences including persons of limited English proficiency, those who are not literate or who have low literacy skills and individuals with disabilities.

                  Regarding the principles of cultural competence , an organization should value diversity in families, staff, providers and communities; have the capacity for cultural self-assessment; be conscious of the dynamics inherent when cultures interact, e.g. families and providers; institutionalize cultural knowledge; and develop adaptations to service delivery and partnership building which reflects an understanding of cultural diversity.  An individual should examine one’s own attitude and values; acquire the values, knowledge, and skills for working in cross cultural situations; and remember that everyone has a culture. [6]

Culturally Sensitive – The recognition and understanding that different cultures may have different concepts and practices with regard to health care; the respect of those differences and the development of approaches to health care with those differences in mind.

Family-Centered Care – Approach that assures the health and well-being of children and their families through a respectful family-professional partnership.   It honors the strengths, cultures, traditions and expertise that everyone brings to this relationship.   Family-centered care is the standard of practice which results in high quality services.

Family Consumer Partnership – The intentional practice of working with families for the ultimate goal of positive outcomes in all areas through the life course.  Family engagement reflects a belief in the value of the family leadership at all levels from an individual, community and policy level.[7]   Examples of family/consumer partnership for Title V organizations can be found on the Family Voices website at:

Children with Special Health Care Needs

Care Coordination Services – Services that promote the effective and efficient organization and utilization of resources to assure access to necessary comprehensive services for children with special health care needs and their families. 

[Title V Sec. 501(b)(3)]  This category sometimes overlaps with services identified as case management.

Case Management Services – Services that assure access to quality prenatal, delivery and postpartum care for pregnant women; Services that assure access to quality preventive and primary care services for infants up to age one.  [Title V Sec. 501(b)(4)]

Children With Special Health Care Needs (CSHCN)– Children who have health problems that require more than routine and basic care, which includes children with or at risk of disabilities; chronic illnesses and conditions; and health-related education and behavioral problems.  For budgetary purposes, CSHCN are infants or children from birth through the 21st year who have special health care needs and for whom the State has elected to provide with services that are funded through Title V.  For planning and systems development, CSHCN are children who have or are at increased risk for a chronic physical, developmental, behavioral, or emotional condition and who also require health and related services of a type or amount that goes beyond that which is required by children generally. 

Constructs of a Service System for CSHCN:


  1. State Program Collaboration with Other State Agencies and Private Organizations

States establish and maintain ongoing interagency collaborative processes for the assessment of needs with respect to the development of community-based systems of services for CSHCN.  State programs collaborate with other agencies and organizations in the formulation of coordinated policies, standards, data collection and analysis, financing of services, and program monitoring to assure comprehensive, coordinated services for CSHCN and their families.

  1. State Support for Communities

State programs emphasize the development of community-based programs by establishing and maintaining a process for facilitating community systems building through mechanisms, such as technical assistance and consultation , education and training, common data protocols, and financial resources for communities engaged in systems development to assure that the unique needs of CSHCN are met.

  1. Coordination of Health Components of Community-Based Systems

A mechanism exists in communities across the State for coordination of health services with one another.  This mechanism includes coordination among providers of primary care, habilitative and rehabilitative services , other specialty medical treatment services, mental health services and home health care.

  1. Coordination of Health Services with Other Services at the Community Level

A mechanism exists in communities across the State for coordination and service integration among programs serving CSHCN, which includes early intervention and special education, social services and family support services.

Additional MCH Terms

Acquired Brain Injury – Injury to the brain which is not hereditary, congenital, degenerative, or induced by birth trauma.  Traumatic brain injury is a type of acquired brain injury.

Bullying–Unwanted, aggressive behavior among school aged children that involves a real or perceived power imbalance.  The behavior is repeated, or has the potential to be repeated, over time.  Additional guidance on bullying surveillance is available at: .

Clinical Genetics – Clinical and laboratory services for individuals and families with, or at risk for, health problems with a heritable component. The application of the principles of inheritance and our knowledge of human genes to diagnose, prevent and treat disease and improve health.

Community – A group of individuals living as a smaller social unit within the confines of a larger one due to common geographic boundaries, cultural identity, a common work environment, common interests and other uniting factors.

Community-based Care – Services provided within the context of a defined community

Community-based Service System – An organized network of services that are grounded in a plan that is developed by a community and based on an assessment of needs.

Genetic Counseling: The process of helping people to understand and adapt to the medical, psychological, and familial implications of genetic contributions to disease. This process integrates: interpretation of family and medical history to assess the chance of disease occurrence or recurrence; education about inheritance, testing, management, prevention, resources and research; counseling to promote informed choices; and adaptation to the risk or condition.

Health Care System – The entirety of the agencies, services, and providers involved or potentially involved in the health care of community members and the interactions among those agencies, services and providers.

(Human) Genetics: The science of genes, heredity and variation in human organisms

Health Care Transition – The process of changing from a pediatric to an adult model of health care.  The goal of health care transition (HCT) is to optimize health and assist youth in reaching their full potential.  To reach that goal, there’s an active process over time that addresses many aspects of a youth’s life, including medical, psychosocial, educational, and vocational needs and ensures continuity of developmental and age appropriate health care services.  Successful transition involves the engagement and participation of the pediatric and adult medical home team, the family and other care givers, and the individual youth collaborating in a positive and mutually respectful relationship.

Medical Home – An approach to providing health care that is accessible, family-centered, continuous, comprehensive, coordinated, compassionate, and culturally effective.  Care occurs in an environment of trust and mutual responsibility between the family, patient , and primary care provider.  The principle of family-centered care defines the care to be received in a medical home while a team-based approach is central to delivering care in the medical home.  Within the medical home, care coordination addresses interrelated medical, dental, mental and behavioral, social, educational, and financial needs to achieve optimal health and wellness outcomes.

Morbidity – A general term for any health condition that encompasses diseases, injuries, and impairments in a population or group.

Mortality – A general term for the incidence of deaths in a population or group.  The number of deaths may be reported by age, sex, race/ethnicity , geographic area, and cause of death.

Mortality RateThe number of deaths occurring in a particular population  during a specific time period, as calculated by the number of deaths in that group (numerator) divided by the total population (denominator) and expressed as per 1,000 live births (infant mortality rate only) or per 100,000 population, generally at mid-year.

National Improvement Partnership Network (NIPN) – A network of States who have an Improvement Partnership (IP), which is a durable collaborative of public and private partners that use the science of quality improvement and a systems approach to improve healthcare infrastructure and practice.  Established in 2009, NIPN is led by the Vermont Child Health Improvement Program (VCHIP).

National Survey of Children’s Health (NSCH)Sponsored by the Maternal and Child Health Bureau of the Health Resources and Services Administration , the NSCH examines the physical and emotional health of children ages 0-17 years of age.  Special emphasis is placed on factors that may relate to well-being of children, including medical homes, family interactions, parental health, school and after-school experiences, and safe neighborhoods.  The NSCH has been fielded three times, in 2003, 2007 and 2011-2012, yielding both State- and nationally-representative data.  The NSCH is currently being redesigned, with the first public release of data scheduled for spring 2017.

National Survey of Children with Special Health Care Needs (NS-CSHCN) – This survey was sponsored by the Maternal and Child Health Bureau of the Health Resources and Services Administration.  The NS-CSHCN was conducted three times, in 2001, 2005-2006 and 2009-2010, and yielded State- and nationally-representative data on the health care experiences of CSHCN and their families.  The NS-CSHCN is currently being combined with the NSCH to provide one unified survey.          

Newborn Screening (NBS) – The process of testing newborn babies for some serious, but treatable, conditions.  NBS can include a heel stick, hearing screen, and pulse oximetry.  The conditions that newborn babies are screened for varies by state.  When a newborn screening result is positive, further diagnostic testing is usually required to confirm or specify the results.

Newborn Screening Long-term Follow-up – Comprises the assurance and provision of quality chronic disease management, condition-specific treatment, and age-appropriate preventive care throughout the lifespan of individuals identified with a condition included in newborn screening.  Integral to assuring appropriate long-term follow-up are activities related to improving care delivery, including engagement of affected individuals and their families as effective partners in care management, continuous quality improvement through the medical home, research into pathophysiology and treatment options, and active surveillance and evaluation of data related to care and outcomes. 

Newborn Screening Short-term Follow-up – The process of ensuring that all newborns are screened, that an appropriate follow-up caregiver is informed of results, that confirmatory testing has been completed, and that the infant has received a diagnosis and, if necessary , treatment. 

Preventive Services – Activities aimed at reducing the incidence of health problems or disease prevalence in the community, or the personal risk factors for such diseases or conditions.

Preventive Oral Health Services – Activities that aim to improve and maintain good oral health and function by reducing the onset and/or development of oral diseases or deformities and the occurrence of oro-facial injuries.  Examples of preventive oral health services include, but are not limited to, oral hygiene instructions, fluoride treatment, and Dental Sealants.

Primary Care/Primary Care Services – The provision of comprehensive personal health services that include health maintenance and preventive services, initial assessment of health problems, treatment of uncomplicated and diagnosed chronic health problems, and the overall management of an individual’s or family’s health care services.

Recommended Uniform Screening Panel (RUSP) – The RUSP is a list of disorders that are screened at birth and recommended by the Secretary of the Department of Health and Human Services (HHS) for States to screen as part of their State universal newborn screening (NBS) programs.  Disorders on the RUSP are chosen based on evidence that supports the potential net benefit of screening, the ability of states to screen for the disorder, and the availability of effective treatments.  It is recommended that every newborn be screened for all disorders on the RUSP.  Most States screen for the majority of disorders on the RUSP; newer conditions are still in process of adoption. Some states also screen for additional disorders.  Although States ultimately determine what disorders their NBS program will screen for, the RUSP establishes a standardized list of disorders that have been supported by the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children (DACHDNC) and the Secretary of HHS.

Safe Infant Sleep Environment – Infant is placed to sleep on its back, in its own crib without blankets or soft items or bed-sharing. Reference:

Sudden Unexpected Infant Deaths (SUID) - Deaths in infants less than one year of age that occur suddenly and unexpectedly, and in whom the cause of death is not immediately obvious prior to investigation.

Sudden Infant Death Syndrome (SIDS) – The sudden death of an infant less than one year of age that cannot be explained after a thorough investigation is conducted, including a complete autopsy, examination of the death scene, and review of the clinical history.

Systems Development – Activities involving the creation or enhancement of organizational infrastructures at the community level for the delivery of health services and other needed ancillary services to individuals in the community by improving the service capacity of health care service providers.

Traumatic Brain Injury – An alteration in brain function, or other evidence of brain pathology caused by an external force.

Get Adobe Acrobat Reader

[2]     Gloor, Peter A.  “ Swarm Creativity.”  Competitive Advantage through Collaborative Innovation Networks. (2006)

[6]      Maternal and Child Health Bureau (MCHB), Guidance and Performance Measures for Discretionary Grants, Health Resources and Services Administration, U.S. Department of Health and Human Services, Denboba and Goode, 1999 and 2004; Cross, Bazron, Dennis and Isaacs, Towards a Culturally Competent System of Care, 1989; Goode and Jones, Definition of Linguistic Competence, National Center for Cultural Competence, Revised 2004; and Denboba, “Federal Viewpoint,” Special Additions Newsletter for Children with Special Health Care Needs, Spring/Summer 2005.

[7]       Definition provided by the Family and Youth Leadership Committee of AMCHP.

To Top